Attention: Restrictions on use of AUA, AUAER, and UCF content in third party applications, including artificial intelligence technologies, such as large language models and generative AI.
You are prohibited from using or uploading content you accessed through this website into external applications, bots, software, or websites, including those using artificial intelligence technologies and infrastructure, including deep learning, machine learning and large language models and generative AI.

PATIENT PERSPECTIVES: Mindset Matters: Survive to Thrive

By: Tom Hulsey, Lived Experience Champion, Mary Crowley Cancer Research, ZERO Prostate Cancer, UT Southwestern Medical Center, North Texas Prostate Cancer Coalition | Posted on: 06 Apr 2023

Background

I heard the words you never want to hear from my doctor on my birthday in 2015: you have prostate cancer (PCa). I’ve always been proactive with my health; that included an annual visit to see my urologist to get a PSA test and a digital rectal exam. It was a complete shock when I was diagnosed with PCa. I was overcome with so many emotions—anger, fear, and embarrassment. Most of all, I felt like a fraud. I had always advocated for a healthy lifestyle. I lived it my entire life—I was superman. Compounding my angst was the fact I had just witnessed my best friend lose his 4-year battle with PCa—it was gut wrenching. I did not want to go through what he went through. As a result, I was ready to give up and kept it inside and only told a few people. I was a typical guy and did not want to talk about a health issue, especially one that was below the belt. I suffered alone. Hindsight: it was a big mistake. I was mentally defeated.

Figure 1. 2022 Escape From Alcatraz Triathlon.

Approach

It took me over a year to talk about it. A friend who I did confide in knew that I was an IRONMAN (IM), and the motto of the IM is “anything is possible.” At that point I changed my mindset and set goals; those included being around to walk my daughter down the aisle and getting to the start line of another IM. Through my cancer and severe coronary atherosclerosis, I found a sense of higher meaning in my plight by switching from nursing my personal sense of tragedy to encouraging empathy for others. My journey has created a passion to help others battling life challenges. I used the skills and mindset required to compete in an IM to fighting 3 life-threatening illnesses. IM is a long day and is a metaphor for life; how you handle adversity is what defines you.

Figure 2. New York University (NYU) 2019 Sports Business Society Awards. Courtesy of NYU Photo Bureau. Reprinted with permission from @Sorel.

Maintenance

As both a survivor and advocate, I am passionate about utilizing my lived experiences to fuel positive changes and impact the health of our world. Today, I am motivated to be intentional knowing I am providing hope and inspiration to those dealing with challenges in their life.

Quality of Life

Looking back, I realized one small but huge difference between my best friend and me regarding our outcomes with PCa was early detection. My friend missed just 1 year in getting his PSA checked and it cost him his life. My grandfather died from PCa, so I have been extremely mindful and diligent about yearly PSA testing. Being an 8-year PCa survivor, I know I owe those years to early detection.

PCa is a double silent killer because by the time symptoms present it is probably at a more advanced stage. In addition, men are not comfortable talking about PCa, which makes it in a way more deadly. One man’s story about dealing with PCa can lead to others being watchful and proactive about detecting the disease in their own bodies.

advertisement

advertisement